Thursday, December 16, 2010

My Christmas prayer

This year has been full of ups and downs. The most of it busy and unpredictable. But between all the Dr's visits, the classes and the struggles, I have been blessed. This time last year I was one of the families being "adopted" and having Christmas gifts provided for me and the kids. This year I was the sponsor of a family in need. Last Dec. I wasn't sure I would even have enough money to pay my phone bill or buy food. This Dec I paid all my bills on time and had money to spare. I have seen the changes in myself and in my life that God had promised me last fall. I knew these changes were coming yet I never thought it would be like this. I cant see the future but I think that this year is going to be big!

Last year at Christmas I told God I just wanted to be the person that he wanted me to be, that I would do or go anywhere He wanted me to. I don't think that I knew how big that prayer was until now. I have overcome so much, went from a client to a mentor, a loner to a groupie, from broke and struggling to everything and everyone paid on time. I know that each and every one of those thing are an act of God. I know that these are the small things that God can, is and will do in my life.

This year if I can only have one answered prayer it would go something like this:

Dear God,

I know that you know all the health problems that Jaxson has. You created him and knew him before even I.
You are the King of Kings and Lord of Lords. You are the ultimate physician. You took those stripes on the cross for our healing, and I ask you now for a miracle. Please heal my baby. Take away all the pain, the drugs, the machines. Take him in your arms and wash all the disease away. Let him be granted more good days in 2011 than bad ones. Please God, make him a whole, healthy 2 year old and let this year be better than his last. Allow me to be the Godly influence in my boy's life that they need. Watch over them and protect them through the year to come and for all this I give you the honor and the glory, forever and ever, Amen 

Monday, December 6, 2010


I am constantly finding it interesting how my two boys have so many things in common, yet are completely night and day from each other. Kaleb has always been a go with the flow kid, a sleeper, a child with lots of creativity but has a hard time showing that in leadership roles. Jaxson is a routine child, an early bird with tons of expression and a born leader.

From early on it was apparent that they were opposites, from the worry free pregnancy with Kaleb and my endless worry during all my medical problems with Jaxson. That all has turned into the unstopable love for Barney (the very annoying dinosaur). Both boys LOVE Barney. I was 9 years in the clear from my last episode of Barney when my little one uttered the words I hoped I would never hear again, Barney. Ugh. I dont know why that purple goof ball bothers me so much, his message is one that most good parents approve of. Episodes full of manners, love, and kindness. None the less I am being tortured yet again by having to sit through countless hours of "I love you, you love me " mantra.

The first common like of the boys was a bath. Most babies whimper or cry during their first baths. Not my kids. From that first time the boys both shared a love for it. Never upset, always relaxed and calm. When Kaleb was young he would beg for a bath and I found it my way (once he was old enough) to clean the house, or fold laundry. Kaleb would stay in the bath for as long as I would let him. I swore he would turn into a walking prune. I would even have to go in and run some warm water in so that he could "just have five more minutes". Jaxson has followed in this love of water. He now has learned how to say bath using words and sign language. He will walk up to me and say "bath, bath, bath" if he gets no response or a not right now he will start asking me in sign language.

Yesterday Jaxson over heard Kaleb say something about a dog taking a bath, this started the bath begging. He came to me begging and I had to tell him not right now we were getting ready to leave. He took off down the hall , which I assumed was to go get his coat out of his room. Once he didnt return I went to look in on him. I hear his giggles as I walk closer to the bedrooms, I look in the room and he is no where to be found. I check Kalebs room and still no Jaxson. I hear the giggles again and realize he is in the bathroom with the door shut! I open the door to find my child in the tub, fully clothed and playing with his rubber duckies. He looks up with that sly smile of his and says "bath".... I could have been looking at Kaleb at that moment. I was taken back to him , so little and begging for bath time.

I love the common interest of the boys, but at the same time I love their differences and cherish the mix of the two. As the time goes by I am sure that I will see many more of these things take light and I will always be able to go back to their "first love" ..... A bath.

Thursday, December 2, 2010

I love you this day!

For as long as I can remember the saying "I love you this day" has been a latch key phrase in my home. Kaleb now 12 was only 4 or 5 and was eating his must have pop tart breakfast when suddenly and out of the blue he looks up at Donna and says " Donna, I love you this day." The innocence of this phrase made it a keeper.

Now years later we still sign notes, emails, or end phone calls with that simple phrase. Every time I say it or hear it I cant help but to have my heart warm. With life being so crazy and things seeming so tough at times its hard to remember the most wonderful things in life that God has blessed us with, Our families.

My hope with this blog is to let you in on my little family. To help others understand the struggles that come with raising children with special / medical needs, and to share with you all the blessings and joy that comes with this life as I know it.